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Datamsa Multiple System Atrophy Patient Data Report: Patient-driven Data
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Bibliographic Detail
Publisher Createspace Independent Pub
Publication date December 2, 2015
Pages 112
Binding Paperback
Book category Adult Non-Fiction
ISBN-13 9781519653963
ISBN-10 1519653964
Dimensions 0.26 by 8.50 by 11 in.
Availability§ Publisher Out of Stock
Original list price $9.95
§As reported by publisher
Summaries and Reviews
Amazon.com description: Product Description: Multiple System Atrophy (MSA) is a rare, degenerative, progressive, neurological disease so named because its signs and symptoms affect multiple systems of the body. There is no effective treatment and no cure. Because of its rarity, the experiences of MSA patients are seldom heard. With the input of fellow patients and individuals affected by MSA (caregivers, loved ones of those lost), I developed a survey to assess our collective experiences. Several drafts of the survey were developed, reviewed, adjusted, and edited over a period of months. In March 2014, I launched dataMSA in recognition of MSA Awareness Month (March). The dataMSA survey was open to all who may have been affected by the disease - patients, caregivers, and loved ones speaking for those lost to MSA. At the time of this printing, nearly 350 people from across the globe have added their experiences to the dataMSA collection. The purpose of this collection is to raise the voices of MSA patients, to advance research and education, to enhance treatment and to find a cure for this debilitating disease. 100% of the profits from the sale of this book will be donated to the MSA Coalition.

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Paperback
Book cover for 9781519653963
 
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from Createspace Independent Pub (December 2, 2015)
9781519653963 | details & prices | 112 pages | 8.50 × 11.00 × 0.26 in. | List price $9.95
About: Multiple System Atrophy (MSA) is a rare, degenerative, progressive, neurological disease so named because its signs and symptoms affect multiple systems of the body.

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